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How patient stories are changing PCOS research

How patient stories are changing PCOS research

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 Kendall Soucie, an associate professor at the University of Windsor, has spoken with many people suffering with polycystic ovarian syndrome. She explains that in Canada, it can take anywhere from 5 to 15 years for a diagnosis. She tells us why studying the lived experiences of people with PCOS is an integral part to the research of this poorly-understood condition. Nam Kiwanuka speaks with Kendall about her hopes and how her own lived experience with it informs her work. Got a question or comment? Email us at: mistreatedpodcast@tvo.org If you, or someone you know, is struggling with mental health, visit any of the following resources for support: Canada.ca/mental-health Kids Help Phone Call 1-800-668-6868 (toll-free) or text CONNECT to 686868. The Government of Ontario's Mental Health Support Resources: https://www.ontario.ca/page/find-mental-health-support Follow TVO on social: https://www.youtube.com/theagenda https://www.instagram.com/mistreatedtvo Join our newsletter: https://www.tvo.org/newsletters Visit the TVO Today website for current affairs journalism, documentaries and podcasts: https://www.tvo.org Research links Canadian PCOS Resource List: https://www.healuwindsor.com/copy-of-canadian-pcos-resources Monash University: PCOS Guideline and Resources - Monash Centre for Health Research and Implementation (MCHRI) PCOS Challenge: PCOS Challenge: The National Polycystic Ovary Syndrome Association The Season's collective (Ontario-specific): The Seasons Collective | Thriving with PCOS PCOS together: (Alberta): Home - PCOS.Together H.E.A.L Lab: https://www.healuwindsor.com Name change for ‘outdated’ PCOS term backed by majority of health professionals, patients: https://www.healio.com/news/womens-health-ob-gyn/20250606/name-change-for-outdated-pcos-term-backed-by-majority-of-health-professionals-patients The under-researched and often misunderstood disorder that affects 1 in 8 women: https://www.independent.co.uk/life-style/health-and-families/pcos-symptoms-name-change-meaning-b2759872.html The Diagnostic Experiences of Women With Polycystic Ovary Syndrome (PCOS) in Ontario, Canada: https://pubmed.ncbi.nlm.nih.gov/33213256/ “It Wasn’t Until I Took the Reins and Said….” Power and Advocacy in Canadian Women’s Narratives of Polycystic Ovary Syndrome Diagnosis and Treatment: https://www.tandfonline.com/doi/full/10.1080/23293691.2022.2054671 See omnystudio.com/listener for privacy information.
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