GMPPA-CDG: A Cure Odyssey
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GMPPA-CDG: A Cure Odyssey
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About this listen
Join hosts Karen Morici and Dr. Ivan Martinez Duncker as they welcome Diana Roetting, a dedicated mom on a mission to find a treatment for her daughter Rosie with GMPPA-CDG, and Kristin Kantautas PhD, a pillar in the CDG community and leader at Perlara, CDG Canada, and FCDGC. It will be a valuable lesson for families navigating through the odissey of finding drugs that improve the life of their children. For more information on congenital disorders of glycosylation please visit our sponsor at cdgcare.org.
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In the spirit of reconciliation, Audible acknowledges the Traditional Custodians of country throughout Australia and their connections to land, sea and community. We pay our respect to their elders past and present and extend that respect to all Aboriginal and Torres Strait Islander peoples today.