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Flying Through Fog: A Podcast for PANS/PANDAS Caregivers

Flying Through Fog: A Podcast for PANS/PANDAS Caregivers

By: Podcasts By Federated Media
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About this listen

When infections or other factors trigger autoimmune responses that attack your child's brain, families find themselves navigating an invisible storm. They seek out care, but often even clinicians wanting to help may not know how. Flying Through Fog brings clarity to the complex world of PANS/PANDAS through real stories, expert insights, and practical guidance.

Tune in weekly for conversations with families who've walked this path, medical professionals who understand the science, and advocates fighting for better awareness and treatment access. You'll hear from parents sharing their diagnostic journeys, experts helping families overcome insurance coverage denials, and clinicians who are in the trenches advancing our understanding of these neuroimmune conditions.

Whether you're seeking answers for sudden behavioral changes in your child, looking for treatment options, or you're a clinician looking for guidance, this podcast offers hope, community and education. We tackle the hard questions about symptoms, therapies, school accommodations, and family dynamics while celebrating the resilience of children and families affected by PANS/PANDAS.

Because when you're flying through fog, you don't have to fly alone.

New episodes drop weekly. Join our community of families, advocates, and professionals working together to raise awareness and improve outcomes for children with PANS/PANDAS.

Flying Through Fog is produced and mixed by Tommie Lee.

Hygiene & Healthy Living Parenting & Families Relationships
Episodes
  • A Light in the Fog: Parents Share Their PANS/PANDAS Stories of Hope
    Nov 18 2025
    When you're in the darkest moments of your PANS/PANDAS journey—when your child is a shell of themselves, when every day feels like surviving an impossible storm—it's hard to imagine that things will ever get better. But they can. And they do. For the final episode of Season 1, hosts Krystal Vivian and Lindsey Forsyth are joined by Angela Henry to share powerful stories of hope from real PANS/PANDAS families. From the mom whose daughter went from a watermelon "cake" due to severe food restrictions to eating real birthday cake a year later, to the child who missed a year and a half of school and is now getting straight A's, to the 19-year-old thriving in pre-med who wants to become the doctor that helps other PANDAS kids—these stories prove that healing is possible. This episode is a reminder that you're not flying through the fog alone. Other families have walked this path, fought these battles, and come out the other side. Whether your child was just diagnosed or you've been in the trenches for years, these stories offer something every PANS/PANDAS parent desperately needs: hope. Sometimes the most powerful medicine is knowing that recovery is possible—and it's happening for families just like yours. Thank you for joining us for Season 1 of Flying Through Fog. We'll be back in 2026 with Season 2. RESOURCES:Surviving The Flares: An Emotional Toolkit For PANS/PANDAS Caregivers — Available wherever you listen to podcasts Claimable https://www.getclaimable.com/ PANDAS Michiana https://pandasmichiana.com/ PANDAS Physician Network https://www.pandasppn.org/ PANDAS Network https://pandasnetwork.org/understanding-pandas/ Angela Henry, LCSW https://angelahenrylcsw.com/services/pandas-pans-ae PANDAS PARENTS Facebook Group https://www.facebook.com/groups/461708653853619 ASPIRE PANS PANDAS Advocacy, Community & Support Aspire Neuroimmune Foundation Neuroimmune Foundation | Inflammatory Brain Conditions Mind Global Council https://www.mindglobalcouncil.com/ OCD Family Podcast https://www.ocdfamilypodcast.com/ Hornets and Hippos Workbook: https://margaretjessoppsyd.com/hornets-and-hippos/ Parenting Resources: Dr. Ross Greene https://drrossgreene.com/ Dr. Becky Kennedy https://www.goodinside.com/about/ Dr. Dan Siegel https://drdansiegel.com/ Brene Brown (professor and researcher of shame, vulnerability, courage and empathy) https://brenebrown.com/ See omnystudio.com/listener for privacy information.
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    42 mins
  • School Refusal and Doctor Refusal: Understanding PANS/PANDAS Behaviors
    Nov 11 2025
    Your child is screaming in the car, refusing to go to school. Or they're hiding under their bed, terrified of another doctor's appointment. You know something is deeply wrong, but from the outside, it just looks like defiance. Welcome to one of the most misunderstood aspects of PANS/PANDAS: refusal behaviors. In this episode, licensed clinical social worker Angela Henry joins hosts Krystal Vivian and Lindsey Forsyth to unpack why so many children with PANS/PANDAS struggle with school and medical appointments—and what parents can actually do about it. From understanding the difference between "not willing" and "not able" to exploring options like IEPs, homeschooling, and unschooling, this conversation offers both validation and practical strategies. Whether your child is currently refusing to get out of the car or you're worried about what happens when refusal turns physical, this episode tackles the hard questions with honesty and compassion. Because sometimes the most important thing parents need to hear is: you're not alone, this is real, and there are people who understand. RESOURCES:Surviving The Flares: An Emotional Toolkit For PANS/PANDAS Caregivers — Available wherever you listen to podcasts Claimable https://www.getclaimable.com/ PANDAS Michiana https://pandasmichiana.com/ PANDAS Physician Network https://www.pandasppn.org/ PANDAS Network https://pandasnetwork.org/understanding-pandas/ Angela Henry, LCSW https://angelahenrylcsw.com/services/pandas-pans-ae ASPIRE PANS PANDAS Advocacy, Community & Support Aspire Neuroimmune Foundation Neuroimmune Foundation | Inflammatory Brain Conditions Mind Global Council https://www.mindglobalcouncil.com/ OCD Family Podcast https://www.ocdfamilypodcast.com/ Hornets and Hippos Workbook: https://margaretjessoppsyd.com/hornets-and-hippos/ Parenting Resources: Dr. Ross Greene https://drrossgreene.com/ Dr. Becky Kennedy https://www.goodinside.com/about/ Dr. Dan Siegel https://drdansiegel.com/ Brene Brown (professor and researcher of shame, vulnerability, courage and empathy) https://brenebrown.com/ See omnystudio.com/listener for privacy information.
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    1 hr and 1 min
  • Siblings, Schools, and Friends: Navigating PANS/PANDAS Conversations With Kids
    Nov 4 2025
    One of the hardest parts of a PANS/PANDAS diagnosis isn't just getting the diagnosis—it's figuring out how to talk about it. How do you explain to your child that their brain is under attack by their own immune system? What do you tell siblings who've been walking on eggshells for months? And how much should teachers, friends, and extended family really know? In this episode, licensed clinical social worker Angela Henry joins hosts Krystal Vivian and Lindsey Forsyth for an essential conversation about communication. They break down how to have age-appropriate discussions with children about their diagnosis, why naming the disease can actually be liberating, and how to navigate the delicate balance between privacy and advocacy. From the child who presents about PANDAS to their entire fifth-grade class to the teenager who only confides in one parent, they explore how different families approach these conversations in ways that work for them. Whether you're preparing to tell your child they have PANS/PANDAS, trying to help siblings understand why things feel so unfair, or wondering what to share with your child's school, this episode offers practical guidance rooted in compassion. Because the right conversations, approached with curiosity instead of judgment, can transform a diagnosis from a source of shame into an opportunity for connection, self-awareness, and hope. Read the full transcript of this episode at PANDASMichiana.com. RESOURCES:Surviving The Flares: An Emotional Toolkit For PANS/PANDAS Caregivers — Available wherever you listen to podcasts Claimable https://www.getclaimable.com/ PANDAS Michiana https://pandasmichiana.com/ PANDAS Physician Network https://www.pandasppn.org/ PANDAS Network https://pandasnetwork.org/understanding-pandas/ Angela Henry, LCSW https://angelahenrylcsw.com/services/pandas-pans-ae ASPIRE PANS PANDAS Advocacy, Community & Support Aspire Neuroimmune Foundation Neuroimmune Foundation | Inflammatory Brain Conditions Mind Global Council https://www.mindglobalcouncil.com/ OCD Family Podcast https://www.ocdfamilypodcast.com/ Hornets and Hippos Workbook: https://margaretjessoppsyd.com/hornets-and-hippos/ Parenting Resources: Dr. Ross Greene https://drrossgreene.com/ Dr. Becky Kennedy https://www.goodinside.com/about/ Dr. Dan Siegel https://drdansiegel.com/ Brene Brown (professor and researcher of shame, vulnerability, courage and empathy) https://brenebrown.com/ See omnystudio.com/listener for privacy information.
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    47 mins
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