In this episode, Beth is joined by Eleanor Connelly from Tide (Together In Dementia Everyday) - a charity dedicated to supporting carers and former carers of people living with dementia. Eleanor opens up about her experience caring for her dad with vascular dementia, and how her own grief led her to the work she now does.

Together, we explore one of the hardest and most hidden parts of dementia: living grief.

The grief you feel while your loved one is still here - but changing. The weight of the lives you’re no longer living. The guilt. The silent thoughts. The things we don’t say out loud because we worry they make us bad carers or bad people. Eleanor shares how opening up about these feelings can be a lifeline.

If you’ve ever felt overwhelmed, resentful, guilty or ashamed for the thoughts you’ve had on this journey -this episode will help you feel less alone.

If today’s episode resonated with you, you can access Tide’s free events, resources, booklets and videos at Tide.uk.net.

Tide isn’t just for carers and former carers - they also provide training and resources for professionals, helping everyone to better understand and navigate the dementia journey.

If you need support with anything discussed in this podcast, visit alzheimers.org.uk for the dementia support line.

To learn more about dementia research and how you can get involved, email infoline@alzheimersresearchuk.org

Hosted on Acast. See acast.com/privacy for more information.

In this episode, Beth is joined by her friend Lauren, who shares the story of her Nana’s dementia diagnosis at 87, after years of slowly declining health.

Lauren explains how her Nana’s diabetes complicated symptoms, delayed a diagnosis and masked what was really going on - and how dementia still hit her family like a shockwave, even at an older age.

This episode is a reminder that dementia always hurts, no matter how old someone is. It still shakes families, it still changes everything and it still takes so much love, patience and strength to navigate it.

If you need support with anything discussed in this podcast, visit alzheimers.org.uk for the dementia support line.

To learn more about dementia research and how you can get involved, email infoline@alzheimersresearchuk.org

Hosted on Acast. See acast.com/privacy for more information.

In this episode, Beth is joined by Helen, whose family has been profoundly affected by familial FTD.

Helen first experienced the disease through her aunt, and later through her mum. When her mum was diagnosed, Helen was confronted with the reality that FTD could be genetic and that it might also shape her own future.

With honesty and courage, Helen shares what it was like growing up in a close, loving family, watching both her mum and aunt change through FTD, and eventually making the difficult decision to undergo genetic testing herself.

She talks about the long and emotional process of counselling, the moment she received her results and how she and her husband began planning for the future while raising their young son.

If you need support with anything discussed in this podcast, visit alzheimers.org.uk for the dementia support line.

To learn more about dementia research and how you can get involved, email infoline@alzheimersresearchuk.org.

Hosted on Acast. See acast.com/privacy for more information.