Episode 1: Living with Rett Syndrome – A Mother’s Journey
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Episode 1: Living with Rett Syndrome – A Mother’s Journey
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In our first official episode, we share the story of living with Rett syndrome through the eyes of a mother and advocate. We dive into what Rett syndrome is, how it connects to the MECP2 gene, and why this gene plays such a crucial role in the challenges families face. From understanding the science to experiencing the day-to-day realities, this episode blends education with personal reflection—building awareness, compassion, and a sense of community for everyone impacted.
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I would like to thank the following people because without them, this wouldn’t be possible my lovely daughter Rayana -follow her on Facebook, insta, TikTok, threads, and Linkeden- Look for RAYANASVOICE
Thank you to Boiler Room Entertainment of Arizona for these podcasts recordings. If you would like to enquire, please email info@boilerroomentaz.com
Email us if you would like to be apart of an episode email us @ rayanasvoice@gmail.com or have feedback/review for discussion
I would also like to also give thanks to one of my childhood friends- Tawfig Jabbar from little ole Xenia! He is the one who suggested this podcast, thank you for being the messenger!
Thank you all for listening