Ep.#112: Austin 1st Foundation
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Ep.#112: Austin 1st Foundation
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About this listen
We share how Austin’s life and a years-long search for answers led the Terlings to build a foundation for families facing rare disease. We dig into research partnerships, caregiver training, and the Aces for Austin golf scramble that turns community into impact.
• one in ten Americans affected by rare disease
• Austin’s UBA5 journey from birth to diagnosis
• the four pillars: research, awareness, change, support
• insurance gaps and noncovered equipment and therapies
• funding drug repurposing for UBA5
• support for UAB’s Undiagnosed Diseases Program
• Children’s of Alabama PICU expansion and COACHES training
• Aces for Austin event details and growth
• volunteer-run model and near net-zero event costs
• how stories personalize statistics and drive action
Austin1stfoundation.org