En primera persona #28 - Erika Velasco - Vivir, no sobrevivir
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En primera persona #28 - Erika Velasco - Vivir, no sobrevivir
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About this listen
En este episodio Erika nos comparte su odisea para llegar al diagnóstico de Hemoglobinuria Paroxistica Nocturna, una enfermedad de baja prevalencia.
Después de diagnósticos y tratamientos erroneos, Hoy, gracias a un protocolo clínico, Erika tiene acceso a un #teatamiento por dos años, de cuales, lleva uno.
En su filosofía de no desperdiciar un solo segundo, Erika está trabajando en la apertura de una Asociación Civil para ayudar a otras personas con Enfermedades de Baja Prevalencia.
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