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Donor Diaries

Donor Diaries

By: Laurie Lee
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About this listen

Donor Diaries is a podcast that delves into the beauty and complexity of living organ donation. Tune in to hear extraordinary stories of people who choose to share their organs and give the gift of life. The world of kidney and organ donation is a powerful testament to kindness, love, and the human spirit.
With over 90,000 individuals on the kidney transplant waitlist and about 13 people dying each day while waiting, the urgency is real. One in three Americans is at risk for chronic kidney disease, and one in nine already suffers from it, often unknowingly.
Donor Diaries offers unfiltered narratives from living donors and candid insights from transplant experts, aiming to elevate the conversation around organ donation. Our goal is to bring this crucial issue to the forefront, so no patient has to wait in vain or suffer needlessly.


© 2025 Donor Diaries
Hygiene & Healthy Living Physical Illness & Disease Social Sciences
Episodes
  • Kidney Pledges, Pet Care, and Paychecks: The Unexpected Support System for Living Donors with the APKD | EP 35
    Jul 9 2025

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    Sue Rees returns to share the revolutionary donor protections offered by the Alliance for Paired Kidney Donation (APKD) that are making kidney donation more accessible and equitable for everyone. As Chief Operating Officer with over 25 years of transplant experience, Sue walks us through the comprehensive "Donor Protect" program designed to eliminate financial barriers while safeguarding donors' futures.

    We explore how the Alliance reimburses lost wages (up to $10,000), covers travel expenses for both donors and their support persons, and even provides dependent and pet care assistance. Sue explains their innovative "Home Advantage" program, which allows donors to recover locally while their kidneys are shipped to recipients across the country. Most fascinating are the various pledge programs that protect donors and their loved ones: the Advanced Donation Pledge, the Family Pledge, the Friend Pledge, and the Kidney Promise.

    The conversation takes a global turn as Sue reveals how APKD's international initiatives are creating life-saving matches across borders. "Our differences can save our lives," she explains, sharing the remarkable story of a Mexican poet with 94% antibodies who found her match in Wisconsin. This global kidney exchange program demonstrates how genetic diversity across populations can be the key to finding matches for highly sensitized patients.

    Sue's personal journey into transplant care adds emotional depth to the discussion. After losing her father to glioblastoma, she was profoundly moved by his nurse's compassion: "I want to be that for somebody," she decided. Today, through her work with the Alliance, Sue helps give second chances to patients and families facing medical crises.

    Whether you're considering donation or simply curious about advances in transplant care, this episode offers invaluable insights into the protections that make kidney donation safer and more accessible than ever before.

    SHOW LINKS:

    Alliance for Paired Kidney Donation
    Donor Protect
    Mexican Kidney Exchange Story

    Donor Diaries Website
    Donor Diaries on Facebook
    GiftWorks Website
    Connect with Laurie Lee

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    33 mins
  • Building a Legacy of Life: The Origins of the Alliance for Paired Kidney Donation | EP 34
    Jul 8 2025

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    What happens when a transplant surgeon, a Nobel Prize-winning economist, and a willingness to trust strangers come together? A revolution in kidney donation that has saved 20,000 lives and counting.

    Meet Dr. Michael Reese and Sue Reese, the power couple behind the Alliance for Paired Kidney Donation. In this captivating first installment of our two-part season finale, we journey back to 2007 when kidney paired exchange was in its infancy and most surgeons believed all transplant surgeries had to happen simultaneously to prevent donors from backing out.

    Dr. Reese takes us behind the scenes of his radical experiment: what if we trusted donors to follow through on their promises even after their loved ones received kidneys? The medical establishment warned this trust-based approach could collapse the entire system. Undeterred, Mike vetted the first chain participant over a steak dinner, separated surgeries by weeks instead of performing them simultaneously, and created what would become what is now a common practice- Non‑Simultaneous Extended Altruistic-Donor chains.

    Sue shares the heartbreaking reality that confronted her as a transplant coordinator: watching patients remain on dialysis despite having willing but incompatible donors.

    Through their pioneering work with the Alliance's sophisticated matching algorithm, the Reeses have transformed how we think about organ donation, proving that human goodness and trust can overcome medical skepticism and logistical challenges.

    Whether you're curious about organ donation, inspired by medical innovation, or simply love stories of human connection, this episode reminds us that our differences—even incompatible blood types—can ultimately save each other's lives.

    SHOW LINKS:

    Alliance for Paired Kidney Donation
    New England Journal of Medicine Article
    People Magazine Article

    Donor Diaries Website
    Donor Diaries on Facebook
    GiftWorks Website
    Connect with Laurie Lee

    Show More Show Less
    33 mins
  • 2 Pastors and a Kidney Voucher | EP 33
    Jun 3 2025

    Send us a text

    A spiritual calling, a kidney voucher, and two pastors reconnecting after decades apart—this is no ordinary transplant story.

    When Jim Pearl was diagnosed with Fabry's disease in 2004, he had no idea his journey would lead him back to Jeff Barker, a seminary friend from the '90s. After five years on dialysis, Jim clung to his mantra: "In the waiting, God is working." Meanwhile, Jeff saw Jim's Facebook post and felt a spiritual nudge to step forward, despite knowing little about kidney donation.

    Though not a direct match, Jeff became a voucher donor donating at NYU Langone. His kidney went to someone in the NKR system, and Jim received a kidney voucher due to Jeff’s donation. Just three months later, Jim received his transplant at University of Utah Health.

    For both pastors, the experience was deeply spiritual. Jim named his kidney "Gigi" (God’s Gift). Jeff sees the donation as part of Christian incarnational theology—"We often think about giving money, but we can give our very selves."

    GiftWorks supported them throughout the journey, helping Jim share his story widely and guiding Jeff through the donation process. Their experience shows how organ donation not only saves lives, but also renews connections, deepens faith, and transforms both donor and recipient.

    Jim’s advice for recipients: "Share your story as broadly as possible. It only takes one set of eyes." Jeff encourages potential donors to remember: "Your first yes is not your final yes. Each step requires thought, and each decision matters."

    Learn more at yourgiftworks.com and consider how making yourself available to others can be a part of something greater.

    Links:
    Connect with Laurie Lee
    GiftWorks

    Donor Diaries Website
    Donor Diaries on Facebook

    Show More Show Less
    30 mins

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