Autism, Epilepsy & the Spectrum: What Our 12-Year Epilepsy Journey Taught Us
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Autism, Epilepsy & the Spectrum: What Our 12-Year Epilepsy Journey Taught Us
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About this listen
In this episode, we talk openly about Alec’s journey with epilepsy over the last 12 years. Alec had his first seizure at 16, and like many individuals on the autism spectrum, epilepsy became an additional and life-changing diagnosis.
According to the Epilepsy Foundation, 20–30% of individuals with autism also have epilepsy, making seizures the most common neurologic complication associated with autism.
We share the realities of navigating the medical system, the frustration of not always being heard, and the long, difficult process of finding the right medication — one that not only controlled seizures but also minimized side effects. Those years were some of the hardest Alec has faced, and they shaped how we advocate, ask questions, and push for better care.
This episode is for families raising children on the spectrum who are also managing epilepsy or other medical complexities. We hope Alec’s story helps you feel less alone, more informed, and more empowered to advocate for your child.
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