A Rare Diagnosis That Saved His Life: Manuel's Story of Loss, Survival, and a Second Chance
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A Rare Diagnosis That Saved His Life: Manuel's Story of Loss, Survival, and a Second Chance
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About this listen
Manuel Romo lost his twin brother, sister, and mother to a genetic condition no one knew they had. Years later, a new diagnosis and lifesaving heart surgery revealed the true cause—and gave him a future. Manuel joins specialists from The University of Kansas Health System to discuss Loeys-Dietz syndrome, monitoring hidden heart risks, and the importance of speaking up, getting checked, and listening to the people who love you.
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In the spirit of reconciliation, Audible acknowledges the Traditional Custodians of country throughout Australia and their connections to land, sea and community. We pay our respect to their elders past and present and extend that respect to all Aboriginal and Torres Strait Islander peoples today.