7/100 TAKE 2 PART 1: Charlene Elsum. You can't order your kid
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7/100 TAKE 2 PART 1: Charlene Elsum. You can't order your kid
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About this listen
This is the episode that I realised I needed to pay for zoom so we didn't get cut off, hence why we have a part 1 and a part 2. Forgive me Charlene.
What do you do when you are a new Mum and you just know something isn't right?
How do you get the doctors to listen? Maybe you are 'just tired' grrrrrrrrrrr!
This is Charlene. No fuss, no drama just getting on with it.
This is her and her daughter Goldie. Navigating CDKL5, hemispherectomy, infantile spasms/west syndrome, Lennox Gastaut syndrome, drug resistant epilepsy.
If you have never heard of this diagnosis that is ok. Charlene will explain and wants to. This is as much about Charlene and Goldie's story as it is about awareness.
This is part one.
*This episode was recorded via Zoom & is unedited.
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