This special episode of Wild Card – Whose Shoes? is part of The World Podcastathon, a global celebration of podcasts that spark conversation, challenge perspectives, and inspire change.

I’m thrilled to welcome the incredible Nicola Enoch, founder and CEO of Down Syndrome UK, a powerhouse advocate who is transforming perceptions, challenging outdated maternity care practices, and empowering families. Nicola’s journey is extraordinary—one that began with fear and stigma when she learned her son, Tom, might have Down syndrome, and evolved into a mission to support parents, shift mindsets, and tackle inequalities head-on.

We explore the power of language in maternity care, the importance of early development, and how health inequalities continue to impact people with learning disabilities. Nicola also shares how her organization is training healthcare professionals and educators to see the person first and break down barriers that still exist today.

This conversation is raw, real, and packed with lemon lightbulb moments—insights that challenge us all to think differently.

Lemon lightbulbs 🍋💡🍋

🍋 Words shape experiences – Describing Down syndrome as a “risk” or “abnormality” impacts how parents feel about their child. Language matters.

🍋 Breaking bad news? Or sharing unexpected news? – How healthcare professionals frame a diagnosis makes all the difference.

🍋 Assume competence – Expecting less from a child with Down syndrome limits their potential. High expectations open doors.

🍋 Health inequalities are real – Diagnostic overshadowing leads to preventable health issues. Parents must advocate fiercely.

🍋 Community is everything – Peer support groups are lifelines. No parent should feel alone.

This is a must-listen for anyone passionate about maternity care, inclusion, and human stories that challenge stereotypes.

🎧 Listen now and join the conversation!

Links:

We hope you will donate to this important charity - here is how you can find out more!

#WildCardWhoseShoes #WorldPodcastathon #DownSyndromeAwareness #ChangingTheNarrative #CoProduction

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Please recommend 'Wild Card - Whose Shoes' to others who enjoy hearing passionate people talk about their experiences of improving health care.