49: Parenting w/ Ehlers-Danlos Syndrome & Perimenopause: The Birth of Self-Care Karen cover art

49: Parenting w/ Ehlers-Danlos Syndrome & Perimenopause: The Birth of Self-Care Karen

49: Parenting w/ Ehlers-Danlos Syndrome & Perimenopause: The Birth of Self-Care Karen

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Ft: Karen Kossow, disability advocate, neurodivergent parent, and co-founder of Faircare Idaho

What happens when parenting, disability, hormones, and burnout collide — and the systems meant to support you quietly disappear?


In this episode, we explore:

  • Brain Fog + Burnout = Breaking Point

    Sarah gets vulnerable about worsening brain fog and fatigue, opening a larger conversation about perimenopause, disability, and survival under constant strain.

  • Late Recognition & Reframing Expectations

    Karen talks parenting autistic kids, navigating Ehlers-Danlos syndrome, and the loss of access of familiar coping mechanisms during perimenopause.

  • The Reality of Caregiving Without Support:

    Why paid family caregiver programs matter, what happens when they’re cut, and how unpaid labor props up broken socioeconomic systems.

  • Develop Self-Care Rituals:

    Learning to read non-verbal body signals, prioritize finite energy, and practice nervous system rest & regulation instead of pushing through.


Key Questions Answered in the Audio:

1. How do I know I’m doing too much?

2. Why are families expected to survive without real systemic support?

3. What practical nervous system grounding tools actually help when you’re already overwhelmed & over-scheduled?


Resources Mentioned:

Karen Kossow’s Substack — Self-Care Support Squad https://karenkossow.substack.com/

Faircare Idaho (family paid caregiving advocacy) https://faircareidaho.substack.com/


Connect With Us

⁠https://www.ndreportpod.com/

⁠Follow @ndreportpod on your social platform of choice

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