Fantastic Pains and How We Hide Them cover art

Fantastic Pains and How We Hide Them

By: Chris Hill & Corina Bose
  • Summary

  • Join on us on our individual journeys living, coping, and laughing at our lives with Ehlers Danlos Syndrome or EDS. We intend to raise awareness about invisible Illnesses, commiserate with fellow chronic disease friends, and share our own coping strategies and advice we have accumulated on our respective journeys
    Chris Hill and Corina Bose 2021
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Episodes
  • Diagnostic Saga
    Apr 20 2024

    The journey of a diagnosis is not always a straightforward one. Sometimes we have a diagnosis that later, under a different medical lens, gets narrowed down to something else than what we anticipated. It's not cookie-cutter for how we're supposed to feel about a change in diagnosis let alone the emotions attached to the start of the journey with the new diagnosis and/or criteria. What are your thoughts on this subject? Feel free to chat with us below!

    Our Website: https://www.fantasticpains.com/ Our PAIN-treon!

    https://www.patreon.com/FantasticPainsandHowWeHideThem

    Join our budding community on our discord: https://discord.gg/Zp7jxdmYSJ

    ___________________________________________________________________

    chill. by sakura Hz https://soundcloud.com/sakurahertz Vintage Radio Station by sakura Hz https://soundcloud.com/sakurahertz Creative Commons — Attribution 3.0 Unported — CC BY 3.0 Free Download / Stream: http://bit.ly/chill-sakuraHz Music promoted by Audio Library https://youtu.be/pF2tXC1pXNo ____________________________________________________________________

    You can find us on these sites as well: Facebook: https://www.facebook.com/FantasticPains Twitter:https://twitter.com/FantasticPains Amazon Music: https://music.amazon.com/podcasts/2fb49252-30a3-4b43-be4d-9ecc74f4c5bf/fantastic-pains-and-how-we-hide-them Youtube: https://www.youtube.com/channel/UC4H3Vfh0y3tu8pLART4IVWQ Spotify: https://open.spotify.com/show/29r3gK6... TikTok: https://www.tiktok.com/@fantasticpains?lang=en Fantastic Pains Merch: Teespring: https://fantastic-pains.creator-spring.com/

    #Fantasticpains #chronicpain #EDS #zebrastrong #ehlersdanlossyndrome #chronicillness #chronicillnesswarrior #ehlersdanlossyndrome #edsawareness #potssyndrome #mcas #medicalmystery #limbotalks

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    1 hr and 26 mins
  • The many faces of Commiseration
    Sep 9 2023

    Commiseration is something we've touched on before in aspects. In this episode we go over the journey we went through early on. How commiseration looked while we were getting diagnosed versus how it's developed current-day. It manifests in a variety of ways depending on the relationship between people and for the chronically invisible can make all the difference in living with a condition. Our Website: https://www.fantasticpains.com/ Our PAIN-treon!  https://www.patreon.com/FantasticPainsandHowWeHideThem  Join our budding community on our discord: https://discord.gg/Zp7jxdmYSJ  ____________________________________________________________________

     chill. by sakura Hz https://soundcloud.com/sakurahertz  Vintage Radio Station by sakura Hz https://soundcloud.com/sakurahertz  Creative Commons — Attribution 3.0 Unported — CC BY 3.0  Free Download / Stream: http://bit.ly/chill-sakuraHz  Music promoted by Audio Library https://youtu.be/pF2tXC1pXNo  ____________________________________________________________________  You can find us on these sites as well:  Facebook: https://www.facebook.com/FantasticPains  Twitter:https://twitter.com/FantasticPains  Amazon Music: https://music.amazon.com/podcasts/2fb49252-30a3-4b43-be4d-9ecc74f4c5bf/fantastic-pains-and-how-we-hide-them  Youtube: https://www.youtube.com/channel/UC4H3Vfh0y3tu8pLART4IVWQ  Spotify: https://open.spotify.com/show/29r3gK6...  TikTok: https://www.tiktok.com/@fantasticpains?lang=en  Fantastic Pains Merch: Teespring: https://fantastic-pains.creator-spring.com/ 

     

    #Fantasticpains #chronicpain #EDS #zebrastrong #ehlersdanlossyndrome #chronicillness #chronicillnesswarrior #ehlersdanlossyndrome #edsawareness #potssyndrome #mcas #medicalmystery #medicaltalk #medicalbias #whatismedicalbias #chronicbias #medicalzebra

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    1 hr and 15 mins
  • Medically Marooned
    Apr 13 2024

    Story time! Today's episode revolves around the trigeminal neuralgia-esque issue's our dear NotChris has been having for some time now. In addition to discussing the symptoms and the struggles of that, our focus is also brought the neglectful treatment and care she's been receiving. What are your thoughts on this subject? Feel free to chat with us below!

    Our Website: https://www.fantasticpains.com/ Our PAIN-treon!

    https://www.patreon.com/FantasticPainsandHowWeHideThem

    Join our budding community on our discord: https://discord.gg/Zp7jxdmYSJ

    ___________________________________________________________________

    chill. by sakura Hz https://soundcloud.com/sakurahertz Vintage Radio Station by sakura Hz https://soundcloud.com/sakurahertz Creative Commons — Attribution 3.0 Unported — CC BY 3.0 Free Download / Stream: http://bit.ly/chill-sakuraHz Music promoted by Audio Library https://youtu.be/pF2tXC1pXNo ____________________________________________________________________

    You can find us on these sites as well: Facebook: https://www.facebook.com/FantasticPains Twitter:https://twitter.com/FantasticPains Amazon Music: https://music.amazon.com/podcasts/2fb49252-30a3-4b43-be4d-9ecc74f4c5bf/fantastic-pains-and-how-we-hide-them Youtube: https://www.youtube.com/channel/UC4H3Vfh0y3tu8pLART4IVWQ Spotify: https://open.spotify.com/show/29r3gK6... TikTok: https://www.tiktok.com/@fantasticpains?lang=en Fantastic Pains Merch: Teespring: https://fantastic-pains.creator-spring.com/

    #Fantasticpains #chronicpain #EDS #zebrastrong #ehlersdanlossyndrome #chronicillness #chronicillnesswarrior #ehlersdanlossyndrome #edsawareness #potssyndrome #mcas #medicalmystery #limbotalks

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    59 mins

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