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Medical Musings With Sam

By: My Medical Musings
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  • Summary

  • I'm a blogger, writer, and founder of online support Group, Medical Musings With Friends. I'm also the author of "My Medical Musings, A Story of Love, Laughter, Faith and Hope." Before becoming chronically ill, with a rare bone disease, I was an Executive Manager with a passion for change management, coaching,and developing my team. Medical Musings With Sam is all about connecting with others, who are trying to live well with chronic illness, in the midst of difficult challenges and hurdles. Come on a journey with me as I share my experience of living a life of faith and hope with my disease.
    My Medical Musings
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Episodes
  • Along Came Alzheimers Disease.....A Raw and Honest Account

    Along Came Alzheimers Disease.....A Raw and Honest Account
    Apr 11 2024
    A few weeks ago, my husband ended up in hospital with a suspected stroke. After numerous tests, including an MRI angiogram, a stroke was ruled out, but he was told he had short-term memory loss and “wear and tear ” showing on the MRA. I could have told them that, so I wasn’t particularly happy with the outcome. Once I was able to view the actual MRA report and do some research, it was apparent the damaged area of the brain was a little more than “wear and tear.” Within weeks, we were given the diagnosis of Alzheimers disease, and a new life changing chapter of our lives begins. I'm going to take you on our journey as much as I can to shine a light on this insidious disease. I hope you'll learn from my never-ending mistskes of what not to do, as well as feel encouraged by our love and commitment to each other to provide ongoing support and to do as much as we can to still laugh and live a life of faith and hope. One thing I forgot to say on the podcast is that my husband is being referred to a neurologist in the hope he might be eligible for medication to slow the process. I'll keep you posted. Here's some links I also promised to Alzheimers Queensland resources: https://alzheimersonline.org/dementia-resources/ and my blog post, " Let's Make Some Lemonade," https://mymedmusings.com/2022/01/19/lets-make-some-lemonade/ Thanks for listening Sam xx www.mymedmusings.com
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    29 mins
  • Pause and Ponder, Divide and Conquer

    Pause and Ponder, Divide and Conquer
    Mar 16 2024
    In this episode, I share my recent complex health update with details not in my blog posts. I share how I'm coping or not coping but more importantly I share my strategies for dealing with so many changes to my health and life circumstances. These tips are as relevant to chronic and complex illness as they are to any other life changing circumstances. I hope you will find something that resonates for you. If you would like to keep up with my musings on a weekly basis you can check in with my blog at www.mymedmusings.com. Thank you so much for listening. I so appreciate your support. Love, Sam xx #change #plans #ponder #divideandconquer #support #pain
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    33 mins
  • Definite Diagnosis, Cancer Investigation, and Treading Water

    Definite Diagnosis, Cancer Investigation, and Treading Water
    Feb 24 2024
    As a patient advocate, I am often called, inspiring, motivating, and full of strength despite my adversities. While I want to be all those things in order to reach others and help them through their own inspiring, motivating, and incredible chronic illness journeys, the truth is most days I am just treading water. I feel every inch of my daily pain. I look in the mirror, and my heart sinks at the reflection of the woman I used to be, let alone the woman I’d like to be now. When we are treading water, we are not drowning. I think that’s an important point. Quite likely to the outside world, we look like we are managing very well. When treading water, your head is still above the ocean, and while a few waves may threaten to crash over, you are generally afloat. Others would have little idea of the struggle going on underneath the calm blue sea. Does A Diagnosis Make a Difference? The diagnosis doesn’t change the outcome in terms of treatment or cure. There isn’t any, but it answers so many questions for me, and that’s priceless! Everything I’ve experienced now makes so much sense. Yes, it’s rare. Yes, it’s a crazy disease. Yes, it’s progressive, and I’m acutely aware of the ramifications of that as my symptoms and my pain levels increase. But I now know why, and for some reason, that knowledge removes its power over me. It’s part of me rather than being something attacking me from nowhere. I hope you enjoy this episode as I share highs and lows and celebrate an amazing diagnostic milestone. Take care Sam xx www.mymedmusings.com #rarediseaseday #Osteopetrosis #cancer
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    39 mins
Social Sciences
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